Café Neuro in Sandwell is taking a break over the summer
The cafe hopes to restart in September.
Have you completed the MS Survey?
My MS My Needs is one of the largest surveys of people affected by MS in the UK. It asks people with MS about their experiences, needs and priorities. If you can, please do complete the survey. More information and details of how to access the survey can be found by clicking here
Good News from the Dudley Community Neurological Team.
Further to previous concerns about the waiting time for services from her team, Frances Pons has made the following statement
“Waiting time in the community neuro team have reduced- as the team have been working really hard to focus on this over the past year. Some patients are still however having to wait up to 11 weeks to be seen for a routine neuro physio home visit.”
Quote from Frances Pons, Dudley Rehab Service Manager, Stourbridge Health and Social Care Centre "Thank you Rehab Team !"
Thanks to Committee member Jackie, we’re bringing several supporting charities together. We’ve done this in the past, and all the workers found it very useful to meet other people doing the same work as them for different conditions.
Our exciting new project Cafe Neuro continues to develop, Dudley Cafe Neuro recently celebrated its first birthday. Cafe Neuro's have also been established in Walsall and Wolverhampton, and from 8th October, Sandwell Cafe Neuro will meet at Windmill Community Centre Smethwick on the second Monday of each month.
The shortage of Neurological Consultants continues. BCNA remains very concerned about this and have been campaigning on for the last two years. In November 2017 the BBC broadcast a programme on Radio 5, which is still available on “Five Live Investigates” with Adrian Goldberg. In it he refers to a report from the National Neurological Alliance, in March 2017, which is still relevant and can be found here.
A new Neurology data and analysis report is available from Public Health England. It explains how commissioners and health professionals can use data and analysis for decisions about neurology services and interventions. Click here to find out more information.
Our spokesperson Bryan Gould has Muscular Dystrophy, so walking is very difficult for him. However, he successfully completed his personal challenge to walk a mile a day for a year, and complete 500 miles, finishing at the Muscular Dystrophy conference in October 2017. His plan was to walk at least one mile every single day, wherever he happened to be and that included a visit to the House of Commons!
When he started he aimed to raise £5,000 “in support of thousands whose muscles cannot move”. So far he has raised a massive £11,962! And his “Just Giving” page is still open; you can find it here, if you’d like to sponsor him.
Bryan Gould on BBC TV, 27th September 2017
Please click here for a copy of our 2018 Annual Report. You will be able to save it to your own computer.
As someone either directly or indirectly affected by a neurological / neuromuscular condition who better to work with the Black Country Neurological Alliance
To ensure that the feedback & solicited views of people directly or indirectly affected by a neurological / neuromuscular condition within the Black Country are appropriately represented by the BCNA in its dealings and engagement with health and social care networks, clinical commissioning groups (CCGs), healthcare collaborations, working groups, forums and charities.
• Be committed to the purpose and values of the BCNA
• As felt comfortable attend healthcare meetings and events as an opportunity to feedback to the BCNA on local support services
• Encourage neurological / neuromuscular charities and associated support groups to work with the BCNA to improve health and social care services here in the Black Country Specific Tasks:
• If possible attend your local area BCNA road show / neurological forum
• Provide timely feedback to the BCNA committee for healthcare meetings and events attended
• If possible attend our AGM
• Provide timely out of pocket expense submissions for any agreed BCNA activities
• Willingness to contribute as part of a team
• Able to deal with confidential information sensitively and appropriately
• Ability to recognise and respect a diversity of views, attitudes and lifestyles
• Able to contribute to BCNA initiatives / discussions
• Computer skills and access to e-mail desirable but not essential
• Personal agreement on time you wish to commit to the role
• Joint agreement with BCNA on the support you feel comfortable to offer Training and support (provided by BCNA):
• Induction pack and induction session
• Out of pocket expenses
• Ongoing support from BCNA Neuro Champion lead and fellow BCNA committee member(s)
To apply or for more information email us at firstname.lastname@example.org .